There are nearly 12 million children in the United States with disabilities.
Most have Siblings.
What would our lives be like if we carried nothing forward from our past? God was gracious enough to use our past with Aliah to polish, groom, and perfect us for what He had prepared for us. Reflecting on our short time with Aliah truly humbles us because we now understand many things that we could not have known then. Nine years of intensely loving this happy little boy lay bare our hearts and equipped us to embrace other children.
We give thanks to God for allowing us to be Aliah’s family. Aliah’s memory is an infinite comforting blessing to us. He must have known that someday he would be a conduit for blessing many children like his own sister. We want you to know there is so much more to him than a syndrome that trapped his body and kept him from flying free like all kids should fly.
There is no phrase that can explain the depth of love between siblings when one has severe disabilities. To witness that special relationship as parents just stirs the heart. Their unconditional love overlooks physical and mental handicaps and focuses on the true person.
With unique insight and a selfless perspective, siblings almost always assume the roles of protector, interpreter, & friend. Let us never forget that the siblings of children with severe, multiple, life-threatening disabilities are also the special objects of God’s care and concern. Aliah always responded to our efforts to care for him with laughter and gratitude. By providing support & granting wishes for siblings of children with severe, multiple, life-threatening disabilities, the Aliah Sweet Fragile Hearts Foundation has the opportunity to show siblings appreciation for their nobility. Siblings are often left out, frequently on the back burner, and regularly the neighborhood child... but never forgotten.
Since 2003, the Aliah Sweet Fragile Hearts Foundation has had the privilege of making hundreds of siblings of children with severe, multiple, life-threatening disabilities feel special by providing support, & granting their individual and collective wishes. Each and every wish is handled with the utmost TLC.
Many years of encouragement, friendship, and prayers have sustained us. It is with enormously grateful hearts and laughter that we say “Thank You” for YOUR part in helping us support siblings.
- Joe, Storme', and Ariel Sweet